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Dangerous Scoliosis: Shehan needs a surgery urgently

Nine year old Shehan from Sri Lanka is suffering with a heavy scoliosis and has difficulties while breathing. The doctors want him to undergo the surgery as soon as possible, but the parents are too poor to pay for this. Together with you we want to help the family and we ask for your support with a donation. (July 2013)


 
ShehanRequired Fund: 10.684,43 Euro
Actual budget: 5.000,00 erhalten
still needed: 5.684,43 Euro

Shehan's history:

Shehan is a nine years old boy studying in Grade 3 and has a brother who is 6 years old. When he was one and a half years old he has had breathing complications, food swallowing complications and wheezing constantly, so the parents had taken Shehan to a doctor but hadn’t diagnosed any other specific complication. Then later on Dr. Dushyantha Madagedara, Cardiologist from Kandy central hospital had identified this almost invincible curve from an x-ray and had guided them to go to Dr. Suraweera, a cardiologist at Peradeniya Hospital. By the time they diagnosed the child with Scoliosis there had been a 45⁰ curve in the spine and he was four and a half years old. Then he had examined the child and had recommended to take the child to India to do the operation as he is very young in age and hospitals in Sri Lanka don’t have the necessary facilities.

In the meantime the parents had started ayurvedic medicine as they had been scared to let Shehan undergo an operation but with the time they had started hearing a very unusual noise along with his heartbeat. They had consulted a very good cardiologist Dr. Wasanthy Perera from the Colombo General Hospital and at this time Shehan was diagnosed with a hole in the heart. Dr Wasanthi referred Shehan to Dr. Dimuthu Weerasuriya a cardiologist from the Kurunegala General Hospital where he had examined Shehan and had mentioned that the hole in the heart is almost healed and the best thing is to take the child for the operation as the curve has been almost 75⁰ by that time and his advice was also to take the child to India.


Shehan back and frontMonthly the child is taken to Dr. Sandamalee Jayasinghe in the District General Hospital Polonnaruwa for general examining purposes. The doctors further recommended that the best surgeon to do this surgery is Dr. Saajan from the Apollo hospital Chennai- India. Shehan was shown to Dr. Saajan once when he came to visit Sri Lanka and there he had also recommended doing the surgery soon as possible because the curve has turned to be 78⁰ by now and its curving more and more in an increasing speed. This would cost one million Indian rupees which would be 2.5 million Sri Lankan Rupees and this is just the cost of the surgery. They have to stay in Chennai-India for 15 days and food and accommodation costs should also be spent by them. Also In this case both the parents have to accompany the child to India.


Shehan with parentsShehan’s father does not have a permanent job and they earn their basic living by engaging in farming. Mother works as an assistant in a shop and earns 10,000.00 LKR (= 65.84 Euro) for a month. Government has given land for cultivation but they only get the profit after 6 months and that’s also not sufficient with the number of loans they have taken to start and keep the cultivation going on. They have collected a sum of 700,000.00 LKR as donations and applied for the president’s fund and waiting for a favourable response too. They have a monthly expense which comes around 5.000,00 LKR for food, doctor fees and travelling for the child.


Funds required for two years

Cost of Surgery, inclusive of hospital and equipment charges and professional fees:
2.700.000,00 SL Rupees = 16.969,39 Euro

Cost for ticket books: 20.000,00 SL Rupees =  125,69 Euro

Total funds received from Friends and family, well wishers, through news paper advertisements, the trustee of the Temple of the Tooth Relic (Diyawadana nilame): 700.000,00 SL Rupees = 4.399,47

Approximate amount to be recieved by selling their land: 300.000,00 SL Rupees = 1.885,48 Euro

Total cost: 2.700.000,00

More Funds required: 1.700.000,00 SL Rupees = 10.684,43 Euro

*As soon as we get information regarding the president’s fund we will let you know so that the required amount of funding will be reduced.

*Currency Rate for this month 159,11 LKR= 1 Euro



Shehan with his brotherWe have considered all the material available and interviewed the parents and we would like to recommend this to be a worthy project and Shehan to be a good candidate for consideration by House of Hope. We hope and trust that the fortunate and kind hearted people of this world will help with donations, to enable us to assist Shehan and help her to lead a normal life like all other children.

Beneficiary Information
Name: E. M Shehan Sandun Bandara
Date of Birth:  04.07.2005
Age: 9 years old
School: Aralaganwila Vilayaaya Madya Mahaa Vidyaalaya
Class:  Grade 03

Family Information
Father’s Name: Dilan Chaminda Ekanayake
Age: 43
Occupation:  Farmer
Monthly Income: 15.000,00 SL Rupees = 95 Euro

Mother’s Name: K. Y. M Renuka Kumari
Age: 33 years
Occupation: shop assistant
Monthly Income: 10,000.00 = 65.84 Euro

Name of the brother: Kanishka Dhananjaya Bandara Ekanayake
Age: 6 Years old
Class: Grade n01
School: Aralaganwila Vilayaaya Madya Mahaa Vidyaalaya


Doctors Information
01. Doctors Name: H J Suraweera (consultant orthopaedic surgeon), Teaching Hospital, Peradeniya
02. Doctors Name: Dr.Saajan Hedge (Chief spine surgeon), Apollo Hospital



Scoliosis    
        
Obliquity, bending is a medical condition in which a person's spine is curved from side to side. Although it is a complex three-dimensional deformity, on an X-ray, viewed from the rear, the spine of an individual with scoliosis may look more like an "S" or a "C", rather than a straight line. Scoliosis is typically classified as either congenital (caused by vertebral anomalies present at birth), idiopathic (cause unknown, sub classified as infantile, juvenile, adolescent, or adult, according to when onset occurred), or secondary to another primary condition. Secondary scoliosis may be the result a neuromuscular condition (Spina bifida, cerebral palsy, spinal muscular atrophy, or physical trauma), or syndromes such as Chiari malformation Patients having reached skeletal maturity are less likely to have a worsening case. Some severe cases of scoliosis can lead to diminishing lung capacity, putting pressure on the heart, and restricting physical activities.

The signs of scoliosis can include:
- Uneven musculature on one side of the spine
- A rib prominence and/or a prominent shoulder blade, caused by rotation of the ribcage in thoracic scoliosis
- Uneven hips, arms or leg lengths
- Slow nerve action (in some cases)

Causes

An estimated 65% of scoliosis cases are idiopathic, about 15% are congenital and about 10% are secondary to a neuromuscular disease .Scoliosis secondary to neuromuscular disease may develop during adolescence, such as with tethered spinal cord syndrome. Scoliosis often presents itself, or worsens, during the adolescence growth spurt and is more often diagnosed in females than males.

Surgery

Surgery is usually recommended by orthopedists for curves with a high likelihood of progression (i.e., greater than 45 to 50° of magnitude), curves that would be cosmetically unacceptable as an adult, curves in patients with Spina bifida and cerebral palsy that interfere with sitting and care, and curves that affect physiological functions such as breathing. Surgery for scoliosis is performed by a surgeon specializing in spine surgery. For various reasons, it is usually impossible to completely straighten a Scoliotic spine, but in most cases, significant corrections are achieved.