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Medical and nutritional support for little Mohammed Kawser

This is a proposal to raise funds to provide financial assistance for Mohammed Kawser, a little boy from Sri Lanka, who is diagnosed with Acute Lymphoblastic Leukaemia. His parents couldn't finance the treatments but this was the only chance to life for the little boy. Thank you for your donations. (July 2011 - Februar/August 2012)

KawserKawser with little brotherNews from August 2012:
Little Kawser is getting regular treatment from the cancer hospital Maharaganma. During last December he was hospitalized for 8 days for fever and thereafter he received the 3rd course of treatment from the cancer hospital. He lost his hair completely due to the treatment he received.  Bone marrow tests will be done to ascertain his progress regularly and drugs will be prescribed accordingly. The family stayed with Kawser’s grandmother in Colombo as it was very much easier for them to get treatment but at present has gone back to their hometown in Tissamaharamaya.

The child was to be admitted to school this year. However, on doctor’s advice the child will be admitted to school next year.

Mohammed KawserNews from February 2012:
We now have collected the full amount for this Save Life projects and forwarded the money to the family. Thank you so much for your Christmas donations. This enabled us to make Mohammed's life a bit easier.

Mohammed's History:
Acute lymphoblastic leukaemia (ALL), is a form of leukemia, or cancer of the white blood cells characterized by excess lymphoblasts.

Malignant, immature white blood cells continuously multiply and are overproduced in the bone marrow. ALL causes damage and death by crowding out normal cells in the bone marrow, and by spreading (infiltrating) to other organs. ALL is most common in childhood with a peak incidence at 2–5 years of age, and another peak in old age. The overall cure rate in children is about 80%, and about 45%-60% of adults have long-term disease-free survival.

Acute refers to the relatively short time course of the disease (being fatal in as little as a few weeks if left untreated) to differentiate it from the very different disease of Chronic Lymphocytic Leukaemia which has a potential time course of many years. It is interchangeably referred to as Lymphocytic or Lymphoblastic. This refers to the cells that are involved, which if they were normal would be referred to as lymphocytes but are seen in this disease in a relatively immature (also termed 'blast') state.

Symptoms The signs and symptoms of ALL are variable but follow from bone marrow replacement and/or organ infiltration.

• Generalized weakness and fatigue
• Anaemia
• Frequent or unexplained [fever] and [infection]
• Weight loss and/or loss of appetite
• Excessive and unexplained bruising
• Bone pain, joint pain (caused by the spread of "blast" cells to the surface of the bone or into the joint from the marrow cavity)
• Breathlessness
• Enlarged lymph nodes, liver and/or spleen
• Pitting edema (swelling) in the lower limbs and/or abdomen
• Petechia, which are tiny red spots or lines in the skin due to low platelet levels

Little Kawser was a very active child until February this year. He suffered from a bad cough and was taking treatment from a doctor in the area for about 3 weeks. Later, his eyes were all swollen and the worried parents rushed him to the Lady Ridgeway Hospital in Colombo. After several Endocardiography tests the doctors found a homogenous tumour mass in the anterior mediastinum and aspirated the pericardial effusion. His Bone Marrow Aspiration Biopsy reports confirmed that he is suffering from Acute Lymphoblastic Leukaemia and he was thereafter transferred to the Cancer Hospital and had been hospitalised there for the past two months. He has completed two courses of expensive medicine and injections for his leukaemia and his blood counts are checked every week.

>>picture: Little Kawser with parents at the HoH Office Sri Lanka.

Kawser after 2nd treatmentHe was discharged last week and the child and the parents are staying in Kawser’s grand mother’s house in Colombo as Kawser has to be taken to the hospital clinic every week. According to the parents the child has a good appetite now and they are very worried that they are unable to provide a proper nutritional diet.
und sie machen sich Sorgen, dass sie ihm über längere Zeit nicht ausreichend Nahrung kaufen können.

>>picture: Kawser after his 2nd treatment.

Little Kawser’s father, Nohoor Pakirdeen Lailadeen aged 31, is a fisherman. He goes to sea for a collective period of about 5-6 months a year and the remaining months he is without work but sometimes gets an odd job here and there. He earns around Rupees 30,000 working about 15 days a month. His earnings from these 15 days of fishing have to be stretched for the rest of the month as well and this makes his average monthly income approximately Rs. 15,000. Kawser’s mother Nona Carmila Mohammed aged 24, is a housewife.

They live in Kirinda near Tissamaharamaya which is about 183 km away from Colombo; Nohoor Pakirdeen is the only money earning person in the family, and he has another son who is just ten months old. They spend approximately Rupees 25,000.00 (Euros 158.21) per month on their household expenditure which includes food, medicine, clothing for the family (including Kauser, Nohoor Pakirdeen, Nona Carmila, Rakahan, Nohoor Pakirdeen’s mother) and payment of utility bills. It also includes the amounts spent on travelling in order to bring the child to Colombo for hospital visits. Since the sickness of his child he has not gone to work as they are in Colombo all the time and he had to take food and other items required by his wife who was with Kawser in the hospital. They managed this with assistance from friends and relations who are also poor. Großmutter in Colombo, nahe beim Krebskrankenhaus, wohin Kawser jede Woche gebracht werden muss. Wie die Eltern berichten, hat Kawser wieder einen gesunden Appetit.

Though Kawser is now discharged from the hospital, he has to be taken to the Maharagama Cancer Hospital clinic every week and therefore the family is forced to stay in Colombo. Therefore he has had no income for the last four months and is finding it extremely difficult to provide the nutritional requirements that the doctors have prescribed for Kawser and also manage the expenses of their younger child and other expenses and they have appealed to us for help.

Funds required

Cost of transport, medicine, nutritional food and Coordination: 10.000,00 SL Rupees monthly
SL Rupees for 2 years: 240.000,00  = 1518,80 Euro for 2 years

Mohammed Kawser and parentsWe would like to recommend this as a worthy project to be considered by House of Hope. We Hope that the good and kind people of this world will help with donations to make this child’s life better, healthy and happy.

Beneficiary Information
Name: Mohammed Kawser
Age : 5 years

Family Information

Father’s Name: Nohoor Pakirdeen Lailadeen
Age: 31 years
Occupation: Fisherman
Monthly Income: Rs.15,000.00

Mother’s Name: Nona Carmila Mohammed
Age: 24 years
Occupation: Housewife
Brother’s Name: Mohammed Rakahan
Age: 10 months
Doctors' Information

Doctor’s Name: Dr.Shehan Perera
Consultant Paediatric Cardiologist
Hospital: Lady Ridgeway Children’s Hospital, Colombo 8

Doctor’s Name: Dr. Devan Mendis
Consultant Paediatrician
Hospital: Lady Ridgeway Children’s Hospital, Colombo 8

Doctor’s Name: Dr. Vasantha Abeyratne
Hospital: Cancer Hospital, Maharagama